Guarantee of the social rights of children with chronic conditions: reinventing care towards civil rights

Guarantee of the social rights of children with chronic conditions: reinventing care towards civil rights

Blog Article

ABSTRACT Objective: To analyze the experiences of families in the exercise of the rights of children with chronic conditions in public health, education and social assistance institutions.Method: ethnographic multiple case study, with qualitative approach, following the theoretical approach of Boaventura Santos.Experiences of the families of these children in a city were studied through interviews with family members, managers and professionals from social institutions (35), participant Tote Bag observations in social spaces (13) and creation of eco-maps (3).Critical Discourse Analysis was performed.Results: the offer of services is lower than the demand, and exclusion processes persist.

Given the hegemony of neoliberal Hoodies/Fleece and normality ideologies, meetings between family members and professionals revealed obstacles to civil rights; however, when these ideologies were challenged, the realization of their rights was enhanced.Final considerations: the care to promote civil rights requires family members, managers and professionals to develop subjectivities that overcome neoliberal and normality ideologies, recognizing these children as subjects of law.